GREAT NEWS!

One week after Nolan was born, I got a call from our state's geneticist. He explained there was a chance that Nolan had an extremely rare disorder called VLCADD (very long chain acyl-coa dehydrogenase deficiency). We immediately started him on a special formula, meds (levocarnitine) & fed him every 3 hours, even through the night. The next day, we met with the geneticist who explained more about the disorder and took a biopsy from Nolan's thigh for more extensive genetic testing which would determine conclusively if he did in fact have VLCADD.
We then waited for the results while following all protocol, acting as if Nolan did have the disorder. After 3 very loooong, sleep deprived months, we were overjoyed to get a call letting us know that Nolan was VLCADD free!
What a blessing it is to have 4 healthy boys!